Archive for October, 2008

Wed. Oct. 29th

Wednesday, October 29th, 2008

This past weekend, we went down to OCNJ and had fun, rain and all.  Ali had a great idea to take some pictures on the beach and we were able to get some in on Saturday right before the storm came.  You would have laughed if you saw us on the beach with hurricane-like wind kicking sand up, me trying to control 2 dogs, Ali holding Andrew’s photo, and Chris running back and forth from the camera/setting the timer, etc.  We looked like a bunch of idiots!!!  :)  We got off the beach right before the deluge.  (See the photo of Ali & Andrew on our Caringbridge homepage!)

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Just a reminder - if you would like to help us out selling “B+ Gear” at the “Kohl’s Cup” Soccer Tournament on Nov 8-9 at Hockessin (DE) Soccer Club, please email me at joe@livelikeandrew.org.  We still need some more volunteers.  Thanks!

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Andrew, enjoy the Phillies game tonight! 

Andrew always loved watching the Phils.  I would love to see his face if the Phils pull it off.  If they win, I’ll post a picture of Andrew in his uniform from Phillies camp about 6-7 years ago.  “B+” is such a test for a lifelong Philadelphia fan!!!  :)

Live Like Andrew - keep life (and professional baseball!) in perspective!

B+

 

Proud to be blessed with two wonderful children and a wonderful wife of 25 years!

Ali’s & Andrew’s Dad

Fri. Oct. 24th

Friday, October 24th, 2008

Delaware Youth Soccer Association (DYSA) and Hockessin Soccer Club (HSC) have very generously decided that our Foundation and Kids Kickin’ Cancer (founded by Alicia & Brandon Lewandowski) will be beneficiaries of the upcoming “Kohl’s Cup” soccer tournament at HSC on Nov. 8-9.  We greatly appreciate this support.  Additionally, we will have a table at the tournament to sell “B+ Gear” so, if you have any free time, we would love to have some volunteers.  If you can help us, please contact me at joe@livelikeandrew.org.

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With the constant barrage of political ads and discussions, we have all heard how this presidential election is going to be a historic one - regardless of which side wins.  While I certainly understand what the commentators mean, isn’t every day ‘historic’?  Don’t we have the potential to make every day ‘historic’?  Have you made today ‘historic’?  If not, when you wake up tomorrow, dedicate yourself to making it ‘historic’…in whatever that means to you.

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A few more Q & As from Andrew’s questionnaire as a 3 yr old.

Q.  Favorite rock group?

A.  Barney and the Backyard Gang!!!  :)

Q.  Favorite food?

A.  Yogurt.

Q.  Biggest wish?

A.  To be big enough to ride in a car without a booster seat!

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I want to thank those of you who continue to leave postings.  I know there are many out there that continue to read our Updates, it’s just nice for us to read your postings as well.  We appreciate your support.

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Just wanted to let you know that OUR Foundation has now helped families of critically ill children in 12 states around the country.  We couldn’t do it without you.  Thank you.

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I can’t wait to post pictures of “Andrew’s Bench” in Ocean City, NJ once the Public Works Dept folks install the plaque.  Andrew and Ali loved playing miniature golf down there and loved monkeys & gorillas.  Well, for those of you familiar with OCNJ, “Andrew’s Bench” is located right across from Congo Falls mini-golf (the one with the huge ape).  The perfect location!

Live Like Andrew - MAKE it a great weekend.

B+

Proud to be,

Ali’s & Andrew’s Dad

Tues. Oct 21st

Tuesday, October 21st, 2008

First, let me congratulate everyone on a successful CureSearch Walk on Saturday in Wilmington.  I was VERY proud of my little girl!  All by herself, Ali got a pre-dawn DART (local mass transit) bus in Newark, rode it to Wilmington, took a transfer to the Riverfront, and registered herself for the Walk.  (This was the first time Ali ever rode mass transit in DE!)  And, she found the strength to go on stage and announce Andrew’s name and release a balloon in his honor.  What a kid!  Am I blessed or what!!! 

I’d also like to thank Delaware Lt. Governor John Carney for acknowledging Andrew, his battle, and his on-going B+ message in his remarks.  John has been a good friend to our family for 40-50 years and a good friend to the Foundation as well.

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Today was a tough day.  This afternoon, I had the honor of paying my respects to Casey Eckman’s Dad and one of her sisters.  Casey’s journey seemed so reminiscent of Andrew’s.  Tremendously healthy, vibrant kids who touched so many people in this world with the potential to touch so many more.  I’m sure Casey will continue to touch so many people from Heaven just as Andrew has done.  It was so hard to see the pain on all those young faces of her ‘family’ of relatives and friends.

This evening, I traveled to Coatesville, PA to pay my respects to Ronald Phillips’ family.  Ronald was a brave, young (13) man who was treated in the PICU at A.I. DuPont Hospital.  Please keep Casey’s and Ronald’s families and friends in your prayers.

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As the weather is starting to get cooler, please check out our ’store’ at www.BePositive.org.  We have some really nice, high quality hoodies.  Also, our new shirt color has been designed by Hannah Gladnick — pink writing on a Carolina blue shirt.  It looks really good.  Inventory will be in soon.  Please visit www.BePositive.org .

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I really like the new picture of Andrew that Ali has posted on the homepage of www.caringbridge.org/visit/andrewmcdonough .  That’s my boy!

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A few more funny (at least I think they are) answers from Andrew’s questionnaire when he was 3.

Q.  Worst nightmare?

A.  “What’s a nightmare?” 

 

Q.  Favorite book?

A.  All About Snakes

 

Q.  Favorite celebrity?

A.  Elvis.  :)

Man, I miss my boy!

Live Like Andrew - hug your loved ones as if it’s the last time!

God bless you.

B+

Forever proud to be,

Ali’s & Andrew’s Dad

Sat. Oct. 18th

Saturday, October 18th, 2008

I regret to inform you that Casey Eckman has passed away.  Casey, like Andrew, was a seemingly healthy person (college kid in Casey’s case) one day and battling AML (Leukemia) the next.  It’s just so tragic.  Please keep her family and friends in your prayers and visit her site if you’re so inclined.  Thank you.

http://www.carepages.com/carepages/

KatharineEckman/updates

Trying hard to “B+”

 

Ali’s & Andrew’s Dad

 

 

Wed. Oct. 15th

Thursday, October 16th, 2008

Please keep Ally Heintz’s family in your prayers.  Ally, an amazingly brave 4 yr old girl from PA, was a neighbor of ours when we were in the A.I. DuPont PICU last year.  Sadly, Ally passed away this past Monday.  Ally inspired so many people at A.I., including us…as did her family.  If you get a minute, please share some words of support for her family.  Thank you.

http://allyheintz.aboutmybaby.com/

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Last Saturday, I had the pleasure of attending the 2nd Annual Headstrong Lacrosse Classic in Ridley, PA.  The Headstrong Foundation honors Nick Colleluori, a 21 yr old athlete, brother, son, and friend of many, who died at the age of 21 from Lymphoma.  I had the honor of meeting Nick’s brother (Pat) a few weeks ago and it was truly an honor to meet Nick’s parents on Saturday.  Nick provided some phenomenal weather for the day.  If you would like to learn more about Headstrong, please visit:

http://www.headstrongfoundation.org/

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Last night, I had the wonderful opportunity to return to my alma mater (Univ of Delaware) to speak to the Greek Council, a group of about 50 student leaders.  We talked about Andrew, the B+ Foundation, and ways that we could partner to raise money for pediatric cancer research.  They’re a great group of people and I’m very encouraged that we will be working together in this battle.  As I told them, no matter how successful we are, it won’t bring my Andrew back, but you might just be saving your future child’s life.  I’ll keep you posted on what transpires on this front.

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We uncovered another funny document of Andrew’s.  It was a questionnaire that he filled out (with his Mom’s help :)    when he was 3 years old.  Over the next few Updates, I’ll share some of his answers.

Q.  Strongest talent?

A.  Making people laugh

 

Q.  Favorite memory?

A.  Being kissed by Minnie Mouse at Disney World

 

Q.  Most embarassing moment?

A.  Bumping into a pole after being kissed by Minnie Mouse.  (That was SO funny.)

 

Q.  Hero?

A.  My big sister, Ali!

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Live Like Andrew - cheer on the Phillies in the World Series!!!  :)         Andrew loved his Phils…he must be smiling!

B+

God bless you and thank you for your support and for caring for ‘our kids’.

Ali’s & Andrew’s Dad

P.S.  Congratulations to my brother, Tom, for running his first marathon on his 50th birthday (Sun.).  He wore a shirt that honored Andrew, our Dad, and our brother-in-law, Dan.

 

Fri. Oct. 10th

Friday, October 10th, 2008

Today, while it was tremendously sad, I had the honor of paying my respects to the Wilson family at Jeremy’s viewing.  I truly feel blessed to have met Jeremy at A.I. duPont Hospital, but I wish I had never met him for this reason.  Folks, there are just too many children battling cancer and other life-threatening diseases.  I never thought that I would know so many children that have gone to Heaven at such young ages.  Please, please pray for Jeremy’s parents and his two sisters.  May they find strength in Jeremy’s spirit.

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I’ve learned of another young lady who needs your prayers and support.  Her name is Hanna Sheppard and in mid-August, she dove into a swimming pool and broke her C-5 vertebrae.  If you would like to send her a nice B+ message for her as she begins a long and difficult rehabilitation, you can post on her site –http://www.caringbridge.org/visit/hannasheppard.

Additionally, some friends of Hanna’s are running a fundraiser whereby they raise money for reviews that you write about businesses.  For more information, please visit:  http://www.insiderpages.com/fundraisers/Help-for-Hanna.

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As the United Way giving season moves into full swing, I encourage you to consider The Andrew McDonough B+ Foundation in your giving plans.  If you are in Delaware, you can simply write in “11776″.  If you are in any other state, please write — “DE Comm Fdn - B+ Fdn” and our address is: 101 Rockland Circle, Wilmington, DE 19803.  Thank you very much for your generosity.

If you would prefer to donate online, please follow this link:

https://www.signup82north.com/beventLive.aspx?EventID=NBI28301080

Thank you, so much, for your generosity.  I know times are tough right now with the economy, but, unfortunately, that doesn’t stop these dreaded diseases from attacking our kids.

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God bless you all and MAKE it a great weekend!!!

Live Like Andrew - put others first…Andrew, please help Pop-Pop celebrate his birthday up there today!!!   :)

B+

Ali’s & Andrew’s Dad

Thurs. Oct 2nd

Friday, October 10th, 2008

Hey, it’s Ali. It’s been a while since I’ve posted, but something has happened that I just have to share with all of you. But before I share my exciting news, I have prayer requests.

Please say some extra prayers for: Jeremy Wilson
(
www.caringbridge.org/visit/
jeremywilson
),
the Adamsky Family
(
www.caringbridge.org/visit/
zackaryadamsky
),
and my friend Carrie Maniscalco
(
www.caringbridge.org/visit/
carriemaniscalco
).
And if you have any spare prayers left after praying hard for these amazing people, if you could throw one or two my dad’s way, I’m sure he’d appreciate it. My dad’s feeling a little under the weather, and unfortunately we know it could be a lot worse (which is why I’m only asking if you have spare ones…the most urgent prayers go to the awesome kids first), so I know he won’t mention it on here. But a little extra prayers couldn’t hurt him, if you have any…

jeremywilson
zackaryadamsky

Now to the exciting news…

Last night I had a Chemistry lab from 7-8:45 pm and since it was late, dark and I’m lazy (there, Mom & Dad, I admit it…) when I got out of lab, I decided to take the bus back to my dorm. So, I was waiting at the bus stop and realizing that if I had walked, I’d already be back to my dorm by now. The bus was still nowhere in sight. I decided to talk to Andrew. I leaned against the wall and looked up to the sky; it was completely black. I couldn’t see anything. I told Andrew how much I miss him. I told him how I hope he knows how much I love him and that I hope he doesn’t think I forgot him, because that’s impossible. Of course I started to cry, which was embarrassing because I was standing on a sidewalk in the middle of campus with people walking by and there I was, crying!? I told Andrew I need a sign to know that he’s ok. I told him how sorry I was that he had to go through all of what he went through and that I’d do anything to take his place then and now. All of a sudden, out of a nowhere, 1 lone star showed up in the sky. Obviously, I started crying more! Finally, the bus came. When I got on the bus the radio was on, but it was just an advertisement for something, I didn’t really pay attention to it. I was in shock of what had just happened! Next thing I know, the advertisement is over and the song “Better in Time” by Leona Lewis started to play. Now, I’ve heard this song before, but this time, as weird as it may sound, I felt like it was a message…One part in particular stood out to me. It said, “Thought I couldn’t live without you; it’s gunna hurt when it heals too; it’ll all get better in time. Even though I really love you, I’m gunna smile cause I deserve to; it’ll all get better in time.” Yup, you guessed it…I started crying. Then, that song ended and I thought to myself, ‘Wow, Andrew. After all this time, the first time I get a sign from you, it’s amazing! You outdid yourself.’ Oh no, Ali. Don’t be silly. He’s not done. The next song started playing and it was a song called “Just Stand Up” by Carrie Underwood, Miley Cyrus, Beyoncé, Rihanna, Mary J. Blige, Melissa Etheridge, Mariah Carey, Ashanti, Fergie, Natasha Bedingfield, Keyshia Cole, Ciara, Leona Lewis, LeAnn Rimes, and Sheryl Crow. Again, I felt like it was a sign. “Just Stand Up” is a song that all of the amazing singers above sang in a fundraiser to stand up to cancer. (Here’s a video of them singing this song…I love it. “Just Stand Up”

) The reason I felt like this was a message to me is because, as some of you may know, the transition to college for me has been difficult and I’m very stressed, but again, I realize that it could be worse. I feel like my transition is different than everyone else’s…I’m kindof jealous of them, in a way, for just being able to ease right into it. Family is so important to me, and my family is so close, that at a time like this when I have to leave, it makes it more difficult. I don’t like not living at home. I feel like I shouldn’t have left my house yet…my parents aren’t supposed to be “empty-nesters”. There’s still supposed to be another kid running around the house…I miss going to Andrew’s games after school. I miss family dinners for 4 (& 3 now…). I miss the simplest things that are often taken for granted. I just miss seeing him; pictures just don’t do him justice. In “Just Stand Up” they say “

 

 

 

 

 

Don’t give up THROUGH IT ALL, JUST STAND UP!” As lame (or not) as it may seem, I feel like Andrew was telling me “don’t give up,” as if to say, “you can get through this, Ali. I know you can.”

 

 

 

 

 

 

Since July 14, 2007, I’ve been praying for a sign from Andrew. He’s been in a few of my dreams, but nothing like this has happened before…it was amazing. I’m still in shock! It’s the weirdest feeling…it’s so exciting, but then painful that he’s still not physically here…I don’t know how to explain it. I told my mom last night and as I told her I realized, maybe this is my birthday present from him! I mentioned that to my mom and she said, “I think you’re right. Andrew never could wait until the actual day (since the actual day’s Monday).” J

 
 

 

 

 

 

 

 

 

 

 

 

 

 

 

So, thank you, Andrew, for the best birthday present EVER. I am never, ever going to forget this one. You still give the best gifts! As always, you set the bar high…
 

 

 

 

 
 

 

 

 

 

 

 

 

 

 

 

 

As I told you last night, I love you so much, Andrew. You mean the world to me, best friend. Now I know for sure, you’re helping me to get through this…I won’t let you down.
 

 

 

 

 
 

 

 

 

 

 

 

 

 

 

 

 

CaringBridge family – please don’t forget the prayer requests at the top of this entry. Thank you for always being here for my family. Sometimes, your guestbook entries are just what we need. Thank you for helping to keep my best friend’s memory alive.
 

 

 

 

 
 

 

 

 

 

 

 

 

 

 

 

 

 

As hard as it may be sometimes, try to B+ always!
 

 

 

 

 
 

 

 

 

 

 

 

 

 

 

 

 

Extremely Proud to Be,
 

 

 

 

 
 

 

 

 

 

 

 

 

 

 

 

 

Andrew’s Sister
 

 

 

 

 
 

 

 

 

 

 

 

 

 

 

 

J

 

 

 

 

 

 

 

 

 

 

 

 

Sun. Oct. 5th

Friday, October 10th, 2008

“Perhaps they are not stars, but rather openings in heaven, where the love of our lost ones pours through and shines down upon us to let us know they are happy.”

It’s with great sadness that I have to tell you that Jeremy Wilson became an angel this morning. I know Andrew was there to welcome him into Heaven and show him around. I’m sure they’re playing soccer and both enjoying being completely healed. Now, we have to pray especially for his parents and sisters, Laurel and Claire (Jeremy, Laurel, and Claire are triplets). My dad visited Jeremy last week and gave him a “B+ Hero” medal. Jeremy, you’re definitely a hero; you deserve that medal. I’m glad my dad was able to give it to you. If you’d like to leave his family messages of support, I know they’d appreciate it. (www.caringbridge.org/visit/jeremywilson).

Try to stay strong Wilson Family. We’re all here for you. Jeremy will help you through it…

Hoping for a Cure…

- Ali

Tues. Oct. 7th

Friday, October 10th, 2008

Hey, it’s Ali again!

Who wants to hear another story?? Andrew gave me another birthday present! As if the other one wasn’t enough, Andrew gave me another awesome gift! It’s definitely at a different level than the other present, but to me, it’s still amazing. Here it goes…

Two years ago we had an end-of-summer party. I ended up jumping in the pool, with my clothes on, and my phone in my pocket. Big mistake. My phone obviously was ruined from excessive water damage. We tried everything to dry out the phone…put it in a bag of rice…let it sit…blow dry it – nothing worked. Well, this was, by far, my favorite phone I’ve ever had (lame, I know). Because it was my favorite, I kept it hoping one day, somehow, it might work. Randomly through the 2 years, I’d try to turn it on and hope it would work. No such luck.

Friday, October 3rd, I was home and looking through my drawers. I saw the phone in the back of the drawer and thought, ‘what the heck, I’ll try to turn it on again.’ This time was different…it turned on!!! I couldn’t believe it! It was around midnight and I screamed! I went running into my parents’ room, woke them up and told them what just happened! I told them that ‘Andrew keeps making this the best birthday ever!’ Ok, so not only did the phone turn on, but it works…perfectly! Of course, I immediately activated the phone…forget my other one! Anyway, I was in shock. I decided to go through the pictures and text messages that were still on the phone from 2 YEARS AGO! There are AMAZING pictures of Andrew on this phone!! I’m so glad it turned on so I was able to see them again! Again, Andrew tends to outdo himself, so for him the pictures weren’t enough. I was going through the text messages and the last text saved said:

Fr: Andrew

Triple S — Stay Strong Sis!

Jul 18, 10:56 pm

 

This text message is from July 18, 2006 at 10:56 pm. I have no recollection of why he may have been telling me to Stay Strong back then…but it’s amazing to me that that text message, from ANDREW, is on my phone, that hasn’t worked for two years, and all of a sudden, when I need it most, it works and this message shows up!!

Andrew’s, again, reminding me to stay strong and not to give up. Of course, I immediately locked that text message so I can save it forever! Andrew continues to impress me.

Also, the main picture and one other in the Photos section are 2 of the photos I found on this phone!!

Thanks for all the birthday wishes. It was the best birthday ever!

- Ali/ “Andrew’s Sister”

PS. This is off topic, but… I know my dad mentioned this before, but you have no idea how excited I am. In Delaware, you have to be 18 by October 8th, 2008 to vote in the presidential election. I made it by 2 days!! So many things could have prevented me from voting…like if I were on time!! (I was three weeks early!) Everything happens for a reason!! So if you couldn’t tell, I’m so into this election. I have so many opinions that I’d LOVE to share with all of you, but I know politics aren’t something everyone likes to talk about. To me, I have no problem with it if it means making more people aware of what’s going on. Everyone’s allowed to have their own opinion, right?

No matter who you like in this election (don’t get on my bad side about this unless you want to have a heated debate J just kidding, kindof… I would like to hear why them though…) you HAVE to vote. I don’t care if you vote for the person I don’t like (well I do care, but I respect your opinion), you must vote. If you don’t vote and let your voice be heard, you can’t complain when you don’t like what’s going on with our country in the years to come. If you’re unsure of who to vote for, now’s the time to start learning. Read about the candidates. Watch the debates!! (but after the debate, look online [http://www.factcheck.org/] to see how much of what they said was factualJ) Please vote…our country’s in the worst shape it’s been in, in some time now, and that’s not acceptable. Learn about the candidates and figure out whose beliefs you agree with most. No matter who wins, this is a monumental election. It’ll make history either way! Why wouldn’t you want to vote and be able to say that your vote made history? When future generations are learning about this election in US History class or something, how cool would it be to be able to say, “yeah, I voted in that election!” It’s easy; just vote!

 

 

 

 

Mon. Oct. 6th

Monday, October 6th, 2008

Happy 18th Birthday, Ali!!!

It’s hard to believe that my little girl is 18!!!  Ali, your Mom, Andrew, and I are all so proud of you.  As readers of this Journal, I think you’ve seen a little bit about what makes Ali so special.  (I just love reading Ali’s Journal Updates!)  But, there’s ten times  more that you haven’t seen.  We are so blessed!  We love you, Ali!!! 

(P.S.  Ali made the DE voting registration cut-off by two days, so she is PUMPED up about voting in the election next month.  She is very passionate about the election and I’m proud that she cares so much about it.)

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As Ali shared with you, Jeremy Wilson has gone to Heaven.  Please keep Jeremy’s friends and family in your prayers.   I’m sure the family would welcome your kind thoughts at:  www.caringbridge.org/visit/jeremywilson

It also saddens me to report that Brendan Kizer, a 17 year old from Hawley, PA, has passed away as well.  Please keep Brendan’s family in your prayers as well.  Comments for Brendan’s family can be posted at:  www.caringbridge.org/visit/brendankizer

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While I usually talk to you about kids, I want to ask for your prayers this time for a Mom.  Her name is Deb and she is a 36 year old mother of two young children and she has advanced Lou Gehrigs’s disease.  Please say a prayer for Deb and her kids.

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As you see from my updates above, it sometimes feels like we’re swimming upstream, but my friend (Denni) and I had the opportunity to visit the National Institutes of Health last Thursday and it was actually quite encouraging.  We spoke with an incredibly bright and dedicated doctor, Dr. Thomas Walsh, about the research landscape.  Dr. Walsh had consulted on Andrew’s care and is a brilliant and passionate advocate in the fight against pediatric cancer.  As you know, one of the objectives of The Andrew McDonough B+ Foundation is to fund research into pediatric cancers and improved chemotherapeutic medicines.  I will keep you posted on how YOUR Foundation is doing on this front.  Please pray that God will bless the researchers with wisdom and perseverance in this battle.

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Finally, I had a really nice visit with the “Hockessin Mom’s Club” last Thursday.  The Club is running a “Touch a Truck” fundraiser in the spring and the B+ Foundation and the Ryan Scott Kappes Foundation are the beneificiaries.  It was an honor to meet Kari Kappes, Ryan’s Mom.  Thank you, ladies, for allowing me to share some time with you and for your generosity.

Live Like Andrew - be comfortable with yourself.

B+

Ali’s & Andrew’s Dad